We’re happy to now be able to share with you a new podcast which is now live at this link. It’s part 1 (of 2), of a conversation with KCIAF co-founder Dr. Sotirios Keros and Ben Forred and Alyssa Mendel of the Sanford Health “Coordination of Rare Diseases at Sanford (CoRDS)” program. Dr. Keros describes the motivation for his research and advocacy efforts related to KCNMA1 disorders, and also talks a little about his background and experience with these types of conditions. He also briefly explains some of the more common symptoms in this condition. It was recorded prior to the official formation of KCIAF, which is why we’re not mentioned directly in the episode. Check it out, and if you have any questions or suggestions, we’re eager to hear them. Post on our forums!
Here’s the description from the CoRDS team:
“In part one of this two-part episode, Ben and Alyssa interviewed Dr. Sotirios Keros. He is a passionate pediatric neurologist with a background in neuroscience research. Through his clinical experience, Dr. Keros has become involved in research into a family of disorders related to mutations in the KCNMA1 gene. In this episode, you'll learn about the gene and related disorders, current research in the space, and a unique perspective on patient advocacy from a very passionate physician scientist.”